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www.downs-syndrome-london.org.uk
Support group for parents and carers of people with Down's Syndrome.
http://www.downs-syn...-london.org.uk/
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www.dsrf.co.uk
Information on the Antioxidant Research Project and raising funds for it. Includes news, health issues, research, events, education, alternate therapies and contact details.
http://www.dsrf.co.uk/
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Down's Syndrome Medical Interest Group UK
Information for healtcare professionals, including UK-specific growth charts, guidelines, and medical information library.
http://www.dsmig.org.uk/
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Cochrane Cystic Fibrosis and Genetic Disorders Review Gro...
Cochrane Cystic Fibrosis and Genetic Disorders Group comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
http://www.liv.ac.uk/CFGD/
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Down's Syndrome North East
Branch of the Down's Syndrome Association offers parental counselling, subsidised leisure activities, Christmas parties and events, play-groups, and newsletters to people with Down's Syndrome, their families and their carers.
http://dsne.homestead.com/
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Story of Robert Purkis
A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.
http://swpurkis.pwp....o.uk/index.html
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UK Turner Society
Contains support, information on hormone replacement therapy for folks with Turner's, health issues for folks with TS, and personal stories.
http://www.tss.org.uk/
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Learning about Intellectual Disabilities and Health
Collaboration between the Down's Syndrome Association and St George's Hospital Medical School, University of London, has produced an information resource, with particular emphasis on the ability of medical professions to empower their patients.
http://www.intellect...isability.info/
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Downright Special
Based in Hull, East Riding of Yorkshire, England, and offering support and advice to parents on all aspects of caring for a child with Down Syndrome.
http://www.downrightspecial.co.uk/
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Woman's 11-stone legs may be lost
The BBC reports on a Lancashire woman's campaign to raise awareness of a condition which has left her with 11-stone legs.
http://news.bbc.co.u...ire/6621331.stm
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www.lmbbs.org.uk
Fully accessible site for people with LMBB, their families, friends, carers and interested professionals. Opinions, news, views, research, updates, and contact details.
http://www.lmbbs.org.uk/
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Down Syndrome Liverpool
Local support group for those with DS, their parents and carers. A registered charity in the UK
http://www.ds-liverpool.org.uk/
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GMDSA Greater Manchester Branch of the Down's Association
Provides information on Down's syndrome and support to parents, carers and professionals. Online newsletter, and list of resources.
http://members.aol.com/GMDSA/
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Cystic Fibrosis Trust
National charity in the United Kingdom which funds research into the disease and provides information and support for patients and families.
http://www.cftrust.org.uk/
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Haemochromatosis Society UK
Voluntary organisation for patients in England, Wales, Scotland and Northern Ireland.
http://www.haemochromatosis.org.uk/
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Down's Syndrome Association
Provides information, counselling and support for people with Down's syndrome, their families and carers, as well as for professionals. Also a campaigning organisation.
http://www.downs-syndrome.org.uk/
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A Special Child in the Family
A cystic fibrosis information site. A guide to living with your sick or disabled child.
http://www.specialchild.co.uk/
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NCL Resource A Gateway For Batten Disease
Information for families and professionals interested in, or affected by, this disease or neuronal ceroid lipofuscinosis NCLs . Includes what it is, genetics, research, treatment, and family support.
http://www.ucl.ac.uk/ncl/
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Silent Suffering From Hemochromatosis
A layman's non-technical account of living with hemochromatosis. Includes symptoms, risk factors, testing and treatment.
http://www.alan.mann...internet.co.uk/
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Gilbert s Syndrome
Presents a description of this condition, other causes of jaundice, diagnosis and consequences.
http://www.netdoctor...rome_003829.htm
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MaxAppeal
A British charity that supports children, families and the medical community concerning DiGeorge syndrome, also known as velo-cardial facial syndrome VCFS and 22q11 syndrome. Find events, news, info sheets, and a newsletter.
http://www.maxappeal.org.uk/
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DebRA UK
Features organization background, information about the disorder, fundraising and research details, and news.
http://www.debra.org.uk/
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Down's Heart Group
Parent friendly support and information relating to heart conditions associated with Down Syndrome. Includes news, contact information and links.
http://www.dhg.org.uk/
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Action on Gilbert's Syndrome
Created by a woman with this condition, information includes description, tips on living with Gilbert's, articles, research and her personal story.
http://www.gilbertssyndrome.org.uk/
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BBC News Doctors hail 'mermaid' operation
Doctors in Peru say they have successfully operated to separate a one-year-old girl's fused legs.
http://news.bbc.co.u...lth/4596501.stm
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Down's Syndrome Trisomy 21 Doctor Patient.co.uk
Down's syndrome is a common genetic disorder characterised by learning difficulty, dysmorphic facial features and a host of structural abnormalities. It...
http://www.patient.c...rome-trisomy-21
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Alternative Medicine Your Money AND Your Life
Alternative Medicine Your Money and Your Life Looks at the evidence for a number of different 'alternative' medical interventions
http://www.second-op...k/alternat.html
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BBC NEWS Health Batten's disease claims Rhys's sister
Charly Daniels, the 10-year-old sister of Batten's disease victim Rhys Daniels, dies after losing her fight against the same crippling condition.
http://news.bbc.co.u...alth/277237.stm
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BBC NEWS Science Nature 3D face scans spot gene syndromes
3D scans of faces are set to speed up the diagnosis of rare genetic conditions, scientists say.
http://news.bbc.co.u...ure/6982030.stm
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Keywords driving traffic to sites in the Regional Europe ...
Discover what popular keywords drive search engine traffic to web sites in the Regional Europe United Kingdom Health Conditions and Diseases Genetic Disorders Down's Syndrome category.
http://www.keyworddi...s-Syndrome.html
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www.Ygyh.org - Your Genes, Your Health
In the United Kingdom, Ygyh.org is ranked 192,385, with an estimated 723 monthly visitors a month. Click to view other data about this site.
http://urlm.co.uk/www.ygyh.org